The Action Group is about
‘no barriers – for all of life.’

We could use lots of fancy words to sum us up, but really it comes down to you, your family and us, working together to get the right support for you, that changes as you change and keeps putting you right at the centre of all that we do.

What our service
users say about us…

  • My life has improved dramatically since receiving support from The Action Group

    Thomas HACSS team 1.12
  • I'm never too old for any activity with The Action Group staff!

    Alan HACSS team 1.2
  • The Action Group have helped me gain much more independence and confidence.

    Lynnette HACSS team 1.1
  • Without this service I feel like I wouldn't be where I am today.

    Caroline HACSS team 1.11
  • I like my staff - they support me to live a happy healthy life.

    Claudia HACSS team 1.8

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11 hours ago

The Action Group

Happy World Down Syndrome Day! In honor of this day dedicated to supporting the rights, inclusion, and well-being of people with Down syndrome worldwide, we're sharing the inspiring story of Kayla McKeon, the first registered Washington lobbyist with Down syndrome who is fighting for change on behalf of people with disabilities across the country! Kayla began working as the Manager of Grassroots Advocacy for the National Down Syndrome Society (NDSS) last year, lobbying for laws that will make it easier for people with disabilities to be independent and thrive. She also hopes that her example will inspire other people with disabilities, especially people with Down syndrome, by showing them that they can achieve their dreams. "We are most definitely ready, willing and able to do anything we set our minds to — getting a job, driving a car, going to college," she asserts. "We want to showcase our abilities, not our disabilities."

Kayla, who is from Cicero, New York, was already familiar with the work of NDSS when the job opportunity came up: she was a member of the group's self-advocate advisory board and was named their self-advocate of the year in 2016. When NDSS President Sara Hart Weir offered Kayla the position, she was hesitant at first: it not only meant new responsibilities, but also a move to a new city, away from her parents. "In the beginning, I needed help with the metro," Kayla says, but now "I've been taking the metro independently in the morning. It's huge just to be independent." Today, she loves her work, which involves both lobbying elected officials and reaching out to NDSS members; as she says, "When I'm at the office I make phone calls after phone calls after phone calls... I love it because this is how we can get our message out."

Kayla's work has already helped other people with disabilities enjoy greater independence; her work helped pass the ABLE to Work Act and the ABLE Financial Planning Act, which allows people with qualifying disabilities to work and save funds in a tax-advantaged savings account without losing state-provided benefits. "I feel the power. And how amazing it feels, just knowing I'm on Capitol Hill. And I get to talk to people that can help me enact laws," says Kayla. "Being a lobbyist on Capitol Hill, I don't realize how many lives I touch. This is why I love being a role model for others... Me being in Washington D.C. is just beyond every expectation I could ever dream of. I love my job. This has always been my dream and I'm following my dream."

For books to help children and teens understand that diversity comes in many forms, including ableness, check out our blog post “Many Ways To Be Mighty: 25 Books Starring Mighty Girls with Disabilities” at www.amightygirl.com/blog?p=12992

Among the recommendations are two wonderful children's books about kids with Down syndrome both for ages 3 to 7: "My Friend Isabelle" (www.amightygirl.com/my-friend-isabelle) and "We'll Paint the Octopus Red" (www.amightygirl.com/we-ll-paint-the-octopus-red)

For adult readers, there is also a touching memoir by the father of a daughter with Down syndrome, “An Uncomplicated Life: A Father’s Memoir of His Exceptional Daughter” at www.amightygirl.com/uncomplicated-life

And, for two excellent books to give all Mighty Girls the confidence to pursue their dreams like Kayla, we highly recommend "The Confidence Code for Girls" for ages 8 to 12 (www.amightygirl.com/the-confidence-code-for-girls) and "The Self-Esteem Workbook for Teens" ages 13 and up (www.amightygirl.com/the-self-esteem-workbook-for-teens)
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1 day ago

The Action Group

Wouldn't Change a Thing
Please share this World Down Syndrome day project with everyone you know!

"Don’t Stop Me Now!” seeks to highlight the ways which people with Down Syndrome of all ages achieve and enjoy life.

This video project lets the fulfilling lives of young people with Down Syndrome do the talking. It holds up a mirror to society and dares the viewer to challenge everything they thought they knew about Down Syndrome, and to think again.

The project is created and published by the parent-led Down Syndrome awareness organisation "Wouldn't Change a Thing" which exists to create a world where negative, outdated perceptions of Down Syndrome are a thing of the past.
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Sharing is Caring
5-year-old Chloe was born with Down syndrome. She practiced a lot to prepare this important message for everyone! ❤️

Please help Chloe raise awareness on World Down Syndrome Day!
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1 day ago

The Action Group

#WorldDownSyndromeDay Have a watch of this fantastic video from Wouldn't Change a Thing!

Wouldn't Change a Thing
Please share this World Down Syndrome day project with everyone you know!

"Don’t Stop Me Now!” seeks to highlight the ways which people with Down Syndrome of all ages achieve and enjoy life.

This video project lets the fulfilling lives of young people with Down Syndrome do the talking. It holds up a mirror to society and dares the viewer to challenge everything they thought they knew about Down Syndrome, and to think again.

The project is created and published by the parent-led Down Syndrome awareness organisation "Wouldn't Change a Thing" which exists to create a world where negative, outdated perceptions of Down Syndrome are a thing of the past.
... See MoreSee Less

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Our latest tweets

Delivered another IMPACT Guidance training course today. Thanks to participants from
@TheActionGroup_
@thistlecharity
@RockTrust_tweet
@nhsfife
@ASHScotland
Thanks for your participation!
https://t.co/q0v63UqUew
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